CHANGING WHAT’S POSSIBLE FOR CALD

A rare genetic disease that causes inflammatory damage in the brains of young boys

In cerebral adrenoleukodystrophy (CALD), genetic mutations drive rapid disease progression, making early intervention critical to help preserve neurological function.

CALD is caused by mutations in the ABCD1 gene, which lead to inflammatory damage in the brain. Without early intervention, the disease can progress quickly, resulting in severe neurologic impairment and early mortality.

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Patient Spotlight

Meet Jack and the Torrey family, who are living with CALD and sharing their story to support and connect with other families.

 

“Jack has taught us so much about living at his speed. When you slow down, you realize how much you’ve been missing—he’s amazing.”

- Jack's mom

Patient Spotlight

Meet Jack and the Torrey family, who are living with CALD and sharing their story to support and connect with other families.

 

“Jack has taught us so much about living at his speed. When you slow down, you realize how much you’ve been missing—he’s amazing.”

—Jack's mom

Cerebral Adrenoleukodystrophy Support

Navigating CALD can feel urgent and complex, especially for families facing early diagnosis. The organization in the link below below offers guidance, support, and community for those impacted by the condition.

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Treatment Centers

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Genetix CARES

Explore our white-glove support designed for patients navigating the treatment journey